Project FAVA is a non-profit patient advocacy group that promotes awareness of fibro-adipose vascular anomalies, educates patients, their families, and the global community, and provides helpful resources to those with FAVA. They also work with scientists, medical providers, and pharmaceutical companies to advance research and move the needle towards more effective and less invasive treatment options.

Visit Project FAVA’s website and sign up ( to stay on top of the latest news and breakthroughs in FAVA care.