The Orphanet website is the most important European portal for information on rare diseases.
Orphanet publishes and updates every year the “Living with a rare disease in France” section which addresses in detail the many aids and devices available. Do not hesitate to consult all the glossary entries as well as the infographic “Living with a rare endocrine disease”.
Maladies Rares Info Service – 01 56 53 81 36 : is the reference information and support service on rare diseases. To be listened to, to be informed, to testify, to exchange.