The RHU-COSY is a 5-year project funded by the ANR as part of the future investment programs (PIA). The RHU-COSY products this website to enhance public access to information about the progress of the project and the partner’s activities.

The coordinator : Pr Guillaume Canaud,
The project manager : Rubina Cassaca

Hôpital Necker Enfants Malades,
Université de Paris,
149 rue de Sèvres,
75015, Paris


OVH : 2, rue Kellermann, 59100 Roubaix.

Website design and production

Data Juristes
Foundation for Rare Diseases
Webmaster contact :

Intellectual property rights

This website is covered by French and international legislation on copyright and intellectual property.

All reproduction rights are reserved, including iconographic and photographic representations. The Website or its content may not be copied and/or displayed, whether in full or in part without the express authorization of the publication manager. For any use, please consult us:

Illegal Content

We invite you to report any abuse or illegal content with as much detail as possible:

Please fill in your contact details for any reported abuse.


The RHU-COSY site may provide links to other websites.

These websites are independent from RHU-COSY. RHU-COSY will not edit or control the sources, content of these websites or their links to other websites. Links to such websites shall not be deemed, in any way whatsoever, to represent any approval or validation of or adherence from RHU-COSY to the contents of such websites. RHU-COSY will therefore not be held liable for the contents, products, services, advertising, cookies or other elements of these websites and any actual or alleged damages or losses consequential to or relating to the use of such information, services or data available over these websites.

Data protection act

You can visit the RHU-COSY site on the web without having to give your identity and provide any personal information. However in accordance with the French law “Loi n°78-17 du 06 janvier 1978 relative à l’informatique, aux fichiers et aux libertés” as amended, you have a right to access, to modify, to rectify and to suppress your personal data, simply by requesting it on line to